Analysis of Clinical and Molecular Genetic Data Influencing the Evolution and Response to Therapy of ADPKD Patients (Autosomal Dominant Polycystic Kidney Disease)

Status

UNKNOWN

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT02887729

Acronym

GENKYST

Enrollment

4000

Registered

2016-09-02

Start date

2010-06-30

Completion date

Unknown

Last updated

2016-09-02

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Autosomal Dominant Polycystic Kidney Disease

Keywords

Polycystic disease

Brief summary

Genkyst is a regional cohort involving up to nephrologists working in private and public nephrology centers in the West of France. It registers clinical and molecular genetic data of all consenting patients with ADPKD from this area.

Interventions

None listed

Study design

Observational model

COHORT

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

18 Years to No maximum

Healthy volunteers

Inclusion criteria

* ADPKD patients followed in Nephrology centers in the West of France * Age \>17

Exclusion criteria

* None

Design outcomes

Primary

Measure	Time frame
Clinical description of the patient	at the inclusion day

Secondary

Measure	Time frame
Genetic analysis	at the inclusion day

Countries

France

Contacts

Primary ContactYannick Le Meur, MD PhD

yannick.lemeur@chu-brest.fr

Outcome results