Spinal Cord Injuries
Conditions
Keywords
Spinal Cord Injuries, Telemedicine, Health Behaviors
Brief summary
My Care My Call (MCMC) is an innovative, peer-led telephone intervention designed to empower adults with chronic spinal cord injury (SCI) in the self-management of their primary health care needs to prevent secondary conditions. In a randomized controlled trial, participants assigned to the MCMC intervention receive tapered calls from a Peer Health Coach (PHC) for six months. PHCs are experienced, empathetic peer mentors living with SCI who act as supporters, role models, and advisors, providing goal-setting support, motivation, education, and resource referral to participants. Participants complete surveys at baseline, 2, 4, and 6-months, as well as qualitative exit phone interviews. It is hypothesized that MCMC will: 1) Increase participants' self-advocacy in health care interactions as reflected in increases in three domains of self-advocacy: assertiveness, illness education, and potential for mindful non-adherence, 2) Increase participants' self-efficacy for health care navigation, preference for involvement in, and satisfaction with their primary care physician (PCP), and 3) Increase health related quality of life and medical social support compared with those receiving usual care. Additional secondary hypotheses state that the MCMC intervention will increase access to primary care and use of preventive screening services compared with those receiving usual care.
Interventions
BEHAVIORALCalls from a Peer Health Coach for 6 months
Weekly calls for 2 months, bi-weekly calls for 2 months, monthly calls for 2 months.
Sponsors
Gaylord Hospital
Hospital for Special Care
National Institute on Disability, Independent Living, and Rehabilitation Research
Boston University
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
PREVENTION
Masking
DOUBLE (Investigator, Outcomes Assessor)
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Self-report of physician-confirmed traumatic spinal cord injury diagnosis * Injured one year ago or more * Telephone access for at least 9 months * Speaks and understands conversational English * Have a current health issue to address
Exclusion criteria
* Moderate to severe cognitive impairment * Surgery scheduled for a 2-week or longer duration during the months of the study
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Patient Activation Measure (PAM) | Change in PAM score from baseline to 2, 4, and 6 months | Measurement of self-management behavior |
Secondary
| Measure | Time frame |
|---|---|
| Patient Self-Advocacy Scale (PSAS) | Change in PSAS score from baseline to 6 months |
Outcome results
None listed