Follow-up Survey of Patients Who Were Treated for Medulloblastoma or Primitive Neuroectodermal Tumors of the Central Nervous in Norway

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT02851355

Enrollment

Registered

2016-08-01

Start date

2016-09-30

Completion date

2018-08-31

Last updated

2019-03-15

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Brain Tumor

Brief summary

Clinical follow-up survey of the Norwegian material of paediatric patients who received therapy for medulloblastoma and CNS-PNET from 1974 - 2013 with a focus on quality of life, education, work, family and children, delayed effects of tumour disease and treatment, endocrine evaluation, existence of auditory neuropathy, and neuropsychological testing.

Interventions

None listed

Study design

Observational model

COHORT

Time perspective

RETROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

5 Years to 51 Years

Healthy volunteers

Inclusion criteria

* Whose who has been treated for medulloblastoma og CNS-PNET between 1974 and 2013

Exclusion criteria

* Other brain tumours

Design outcomes

Primary

Measure	Time frame	Description
SF 36 for those older than 18 years	1 year	Questionnaire
PedsQL for those younger than 18 years	1 year	Questionnaire

Countries

Norway

Outcome results