Mycosis Fungoides, Non-Hodgkin's Lymphoma
Conditions
Brief summary
The purpose of the study is to develop a prognostic index model for the rare disease of mycosis fungoides and sezary syndrome. This will be done by collecting standardized clinical data at various institutions. The investigators hope this will enable the identification of low- and high-risk groups for survival in order to improve patient care and outcome.
Interventions
None listed
Sponsors
Stanford University
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Healthy volunteers
No
Inclusion criteria
* Diagnosis of advanced stage MF or SS (Stages IIB - IVB) within 6 months of presentation to the participating center * Patients that are expected to have care administered at the participating center or jointly with referring physician(s) where follow-up data would be available
Exclusion criteria
* Patients diagnosed with early stage MF/SS (Stages IA-IIA) before progressing to advanced stage * Patients diagnosed with advanced MF/SS more than 6 months prior to initial presentation to the participating center * Exclude one-time consultation type of new patients.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Overall survival (OS) | date of diagnosis to death from any cause, up to two years |
Countries
Argentina, Australia, Brazil, China, Japan, United Kingdom, United States
Contacts
Primary ContactTatiana Neal
Outcome results
None listed