Multiple Sclerosis, Muscular Dystrophy, Post-polio Syndrome, Spinal Cord Injury
Conditions
Brief summary
This project is an adaptation trial, testing the efficacy of an evidence-based community wellness program, Enhance Wellness (http://www.projectenhance.org/enhancewellness.aspx), in a sample of middle and older-aged adults living with multiple sclerosis, spinal cord injury, post-polio syndrome and muscular dystrophy.
Detailed description
This is a quasi-experimental project, comparing the effects of Enhance Wellness in a sample of adults aged 45 years or older and living with long-term physical disability, to two quasi-control groups: a sample of adults without long-term disability participating in Enhance Wellness, and a sample of adults with long-term disability not participating in Enhance Wellness. Outcomes are collected pre-intervention and post-intervention, approximately 6-months apart.
Interventions
BEHAVIORALEnhance Wellness
A 6-month health promotion intervention which pairs participants with a wellness coach to identify and pursue a health-related goal of their choosing.
Sponsors
University of Washington
Study design
Allocation
NON_RANDOMIZED
Intervention model
PARALLEL
Primary purpose
HEALTH_SERVICES_RESEARCH
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
45 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* Multiple Sclerosis, Muscular Dystrophy, Post-Polio Syndrome, or Spinal Cord Injury diagnosis (Group 1 and 3) * Living in King County, Washington (Group 1 only) * Ability to read and understand English
Exclusion criteria
* Active suicidal ideation * Requires the use of a mechanical ventilator to breathe or speak
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Questionnaire: Level of reported self-efficacy as measured by the University of Washington Self-Efficacy Scale Questionnaire | 6-months | This is a self-reported measure of perceived efficacy to manage conditions or symptoms related to a person's physical disability or condition. Greater scores represent greater self-efficacy. |
| Questionnaire: Patient Reported Outcome Measurement Information System (PROMIS) Pain Interference Short Form | 6-months | Self-reported measure of pain interference. Greater score indicate greater pain interference. |
| Questionnaire: Patient Reported Outcome Measurement Information System (PROMIS) Depression Short Form | 6-months | Self-reported measure of depression. Greater scores indicated greater depressive symptoms. |
Countries
United States
Outcome results
None listed