End of Life, Terminal Illness
Conditions
Keywords
palliative care, quality, indicator, multi-dimensional
Brief summary
The purpose of this study is to elaborate a multi-dimensional indicator of the quality in palliative care for patients of end-of-life. The study will, as secondary objectives: * elaborate in a standard manner one set of indicators of organization and inner working of a palliative care setting. * compare according to these indicators, the qualities of 3 types of palliative care: palliative care unit in hospitals, specified identified bed for palliative care patients and non-specified bed. * explore the relationship between organizational aspects and results in term of burden.
Detailed description
A multicentric study aims on quality of palliative care and will be conducted in three types of 7 palliative care settings: two hospices, two hospital-based palliative care units and three medical units where a mobile palliative care team intervenes.
Interventions
None listed
Sponsors
Assistance Publique - Hôpitaux de Paris
Study design
Time perspective
RETROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Aged ≥ 18 years. * Patient with serious progressive illness and in terminal phase (life expectancy \< 3 months): OMS stage is 3 or 4, regardless of etiology. * Patient informed their diagnosis or not. * Hospitalized at the moment of inclusion in one of the following care settings: palliative care unit, identified bed or non-identified bed in a care department of short stay. * No-oppose to participate to the study, by patients, their families or trusted person.
Exclusion criteria
* Patient has difficulties in reading, writing or understanding french language, also their family. * Hospitalization in the palliative care setting \< 48 hours.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Indicator for medical files | At enrollment | The indicators have been defined by the study, in order to evaluate quality of medical files, such as completeness and discriminatory capacity. |
| Questionnaire for patients | From date of enrollment until the date of first documented leaving from hospital or date of death, whichever came first, up to 2 years | A questionnaire has been elaborated beforehand by the study will be answered by patients in order to evaluate quality such as reliability, dimensionality and validity against criterion. |
| Indicator for caregivers | From date of enrollment until the date of receiving questionnaire returned by caregiver, up to 2 years | In order to evaluate quality such as reliability and dimensionality, a questionnaire will be answered by caregivers: \- the Nursing Stress Scale (NSS). |
| Questionnaire for families | From date of enrollment until the date of receiving questionnaire sent by family, up to 2 years | A questionnaire has been elaborated, will be answered by patients' families. |
Countries
France
Outcome results
None listed