PFAPA Syndrome
Conditions
Brief summary
This cohort study aims to assess the quality of life (or welfare) related to the health of children and adolescents with an non genetics auto-inflammatory disease PFAPA or Marshall syndrome to compare it to children or adolescents with recurrent fever genetics of Familial Mediterranean fever (FMF) in order to improve their overall care.
Interventions
OTHERQuality of life
Quality of life
Sponsors
Versailles Hospital
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
2 Years to 18 Years
Healthy volunteers
No
Inclusion criteria
* PFAPA syndrome patients or FMF patients
Exclusion criteria
* Participation refusal
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Compare quality of life from patients with PFAPA and FMF, reported by parents and by patients themselves | 1 day |
Secondary
| Measure | Time frame |
|---|---|
| Evaluate the fatigue status of patients through questionnaire PedsQL TM 3.0 multidimensional scale tiredness | 1 day |
Countries
France
Outcome results
None listed