Psoriasis, Quality of Life
Conditions
Brief summary
The Dermatological Diseases Family Impact Scale (DeFIS) was developed to assess different aspects of health-related quality of life in the relatives of the patients with various skin diseases. The preliminary validation of this instrument was performed for the Turkish population. In the pilot study, this 15-item-questionnaire was shown to be easy to complete and score, and reliably help to evaluate the family members' quality of life. Psoriasis is a chronic disease which can be expected to have a significant impact on the quality of life of the patients and parents/family members alike. In line with this assumption, previous studies demonstrated that psoriasis psychosocially affects not only the patients, but also their close relatives. The psoriasis family index has been developed in an effort to objectively measure the health-related quality of life of the family members of patients with psoriasis. Nevertheless, data regarding the health-related quality of life of the parents of pediatric patients with psoriasis in the Turkish population are relatively scarce. In study, the investigators primarily aim to utilize DeFIS to assess the impact of childhood psoriasis on the quality of life of the patients' parents. Further, the investigators attempt to investigate the relation between the quality of life of the patients and their parents, and reveal disease characteristics which might influence the quality of life.
Interventions
None listed
Sponsors
Bakirkoy Dr. Sadi Konuk Research and Training Hospital
Haseki Training and Research Hospital
Haydarpasa Numune Training and Research Hospital
Istanbul Training and Research Hospital
Prof. Dr. Cemil Tascıoglu Education and Research Hospital Organization
Sisli Hamidiye Etfal Training and Research Hospital
Istanbul Medeniyet University
Study design
Observational model
CASE_ONLY
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
3 Months to 18 Years
Healthy volunteers
No
Inclusion criteria
* Pediatric patients diagnosed with psoriasis by the dermatologists within the study period
Exclusion criteria
* Patients with an equivocal diagnosis * Parents unable to complete the questionnaire * Patients with a serious medical disorder or in an emergency condition
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Assessment of the impact of childhood psoriasis on the parents of the patients using the Dermatological Diseases Family Impact Scale | 6 months |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Comparison of the quality of life of the parents (as evaluated using the Dermatological Diseases Family Impact Scale) with the quality of life of the patients (as assessed using the Children's Dermatology Life Quality Index) | 6 months | — |
| Delineating disease characteristics which influence the patients' and/or their parents' health-related quality of life | 6 months | Disease characteristics such as age of onset, disease subtype, psoriasis area and severity index and scalp involvement will be recorded. The impact of these parameters on quality of life will be assessed using statistical methods. |
Countries
Turkey (Türkiye)
Outcome results
None listed