Sickle Cell Disease
Conditions
Brief summary
The investigators will explore barriers to improving self-efficacy, or the ability to feel in control of their disease, and medication adherence with text messaging through surveys and interviews with adolescents and adults with SCD cared for at the Vanderbilt Meharry Center of Excellence (VMCE) in Sickle Cell Disease (SCD). The investigators will identify preferences to improve and sustain adherence to daily medication through selection of investigator-proposed or patient-generated text messaging strategies. Finally, the investigators will fill in the literature gaps by describing barriers to self-efficacy and medication adherence among adults with SCD as well as adolescents with SCD who are transitioning to adult care.
Interventions
The investigators will perform semi-structured interviews and surveys on this cohort
Sponsors
Vanderbilt University
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
12 Years to 70 Years
Healthy volunteers
No
Inclusion criteria
1. Receiving care at the VUMC/Matthew Walker clinic 2. Diagnosed with SCD, asthma, or both 3. Currently taking daily medications for SCD, such as hydroxyurea, asthma, or both 4. Having access to a mobile telephone and/or computer 5. Age 12-70 years
Exclusion criteria
1\. Unable to perform interviews or surveys
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Number of patients with barriers to medication adherence | 1 year | High cost, forgetting, side effects, access to medications |
Secondary
| Measure | Time frame |
|---|---|
| Number of patients that prefer a tailored text messaging technological solution | 1 year |
Countries
United States
Outcome results
None listed