Developing a Program for Transition to Adult Care for Youth With Chronic Conditions : a Mixed Method Study

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT02617030

Acronym

TRANSAD

Enrollment

390

Registered

2015-11-30

Start date

2014-09-30

Completion date

2018-10-31

Last updated

2023-02-03

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Transition Care

Brief summary

Investigation in 3 steps the transition of young people with chronic diseases. FIRST STEP: qualitative survey. Interviews with carers, young people and parents. Chronic Diseases studied: epilepsy, HIV, sickle cell disease, obesity. SECOND STEP: Delphi consensus survey. Vote on internet : carers, patients' associations, young people and family. Chronic Diseases studied: all. THIRD STEP: validation survey. Vote on internet : young people. Chronic Diseases studied: all.

Interventions

None listed

Study design

Observational model

OTHER

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Healthy volunteers

Inclusion criteria

* Youth with chronic diseases after transfer to adult care * Parents or guardians of these youth. * Professionals caregivers from pediatric services and adult services involved in transition

Exclusion criteria

Design outcomes

Primary

Measure	Time frame
Agreement rate for each component of the transition program defined	2 years

Countries

France

Outcome results