Burns
Conditions
Keywords
Patient Reported Outcomes Measure, Burns
Brief summary
The primary objective of the overall study is to determine the feasibility and usefulness of a feedback system that delivers BOQ results to physicians in real time during outpatient encounters using iPads.
Detailed description
The primary objective of this pilot study is to ascertain the feasibility and usefulness of a feedback system that provides clinicians with parent-proxy reported outcomes measure data during routine outpatient encounters for burn treatment. The secondary objective of this first phase of the study is to determine clinicians' and parents perception of the experience of completing the BOQ+P and/or the usefulness of the information that was provided to the clinician and parent/guardians(s). For this reason we will collect a brief debriefing questionnaire from physicians and another from parents.
Interventions
DEVICEiPads
The current study will help determine if using Burn Outcomes Questionnaire and 17- item Pediatric Symptom Checklist (PSC-17) feedback data, collected on iPads or online, over the course of patient treatment will be useful for the physicians and ultimately impact the recovery of the patient.
Sponsors
Stephanie Romo
Study design
Allocation
NON_RANDOMIZED
Intervention model
PARALLEL
Primary purpose
SCREENING
Masking
NONE
Intervention model description
Arm A: Patients 5-18 years old Arm B: Patients 0-4 years old
Eligibility
Sex/Gender
ALL
Age
No minimum to 18 Years
Healthy volunteers
Yes
Inclusion criteria
* Children between the ages of 0 and 18 years of age, receiving outpatient burn care at Shriners Hospitals for Children - Boston with total body surface area burn of ≥ 5% and/or a burn injury to face, hands, feet or genitalia. English or Spanish speaking and literate
Exclusion criteria
* Clinician overriding a patient to serve on the study because of medical/psychiatric problems that might in the opinion of the clinician overwhelm the goals/purposes of the study.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Responses to Clinician Debriefing Questionnaires | Participants will participate for the duration of one outpatient visit, an expected average of 3 hours. | After viewing the BOQ feedback and seeing the patient, the clinicians will rate whether or not they found the BOQ+P data useful. The measure includes 5 Likert-Scale questions and 1 open-ended question that asks for their feedback about the system. |
Countries
United States
Outcome results
None listed