Breast Cancer(BC) Survivors
Conditions
Brief summary
This study will describe patient-reported symptom burden and concerns, quality of life (QOL), and health behaviors of breast cancer(BC) survivors who have completed initial treatments (e.g., surgery, chemotherapy, and/or radiotherapy), assess the feasibility of using a web-based platform to collect patient-reported outcome (PRO) data, and evaluate provider satisfaction following delivery of an electronic health record (HER)/EPIC summary of these PROs. Secondary aims will estimate differences in referral to available services between those providers exposed to the PRO summary and historical controls. BC survivors who have completed initial treatment and present within the first year following treatment for an end of treatment (EOT)/survivorship focused visit will be the focus of this study.
Interventions
BEHAVIORALQuestionnaire
Sponsors
Abramson Cancer Center at Penn Medicine
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
FEMALE
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
1. Diagnosed with invasive, non-metastatic BC (Stage I, II, or III) without hematogenous or distant metastases 2. Have completed initial treatment (chemotherapy, radiotherapy, and/or surgery). May still be receiving hormonal or targeted therapy (e.g., tamoxifen, aromatase inhibitors). 3. Within 1 year of completing primary treatment 4. Scheduled for an EOT visit 5. Age 18 years or older 6. Can understand written English 7. Have internet access and a working email address
Exclusion criteria
1. Diagnosed with non-invasive (Stage 0/DCIS) or metastatic (Stage IV) cancer or hematogenous or distant metastatic disease 2. No working email address -
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Completion of Questionnaire | 2 years |
Countries
United States
Outcome results
None listed