Skin Disease
Conditions
Keywords
skin disease, telemedicine
Brief summary
The investigators want to demonstrate that a new organization with telemedicine could rationalize the treatment pathway of patient suffering from rare skin disease. A diagnosis and a personalised treatment pathway could be performed before the consultation in the hospital.
Interventions
PROCEDUREtelemedicine
treatment pathway organized by telemedicine
Sponsors
University Hospital, Toulouse
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Eligibility
Sex/Gender
ALL
Healthy volunteers
No
Inclusion criteria
* New patients suffering from a rare skin disease whatever pathology or age, which needs a take-over by this centre * Or patients already take-over by the centre but lost to follow-up for more than one year * Patients (and/or parents) who give their consents * Patients (and/or parents) able to fill in questionnaires
Exclusion criteria
* Pregnant or breast-feeding women. * Patients subject to a judicial safeguard order * Patients who need an emergency take-over * Patients followed by a doctor who does not have a computerized system or refuse to send data via the secured messaging
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Number of hospital visits | 6 months | Interest of a procedure of telemedicine on the organization of the treatment pathway of patients affected by rare skin diseases in terms of change of the number of visit in hospital. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Improvement of the treatment pathway and its organization | 6 months | Traceability in the information system by composite criteria : number of completed application forms, number of meeting per month, number of meeting a month, number of patients treated a month, time dedicated to the logistical coordination (collection by sheets of weekly time) and number of new patients per month. |
| Satisfaction of the patient | 6 months | questionnaire of satisfaction Short Form-36 Health Survey (SF36) |
| Change of the cost related to the patient care (direct and indirect). | 6 months | Composite criteria with number of consultations and hospitalizations, number of visit in hospital and number of days of work and school absenteeism. |
| management of time by the medical personal. | 6 months | collection by sheets of weekly time |
Countries
France
Outcome results
None listed