Moyamoya
Conditions
Brief summary
This is a study to ascertain the number of children with moyamoya in the UK, their presenting features, clinical course and outcomes.
Detailed description
The study ahs 3 components: 1. Patient identification via the British Paediatric Surveillance Unit, and the 21 collaborating centres 2. Record review/patient interview to determine clinical features & outcomes 3. Centralised review of imaging data to ascertain radiological phenotypes
Interventions
None listed
Sponsors
Great Ormond Street Hospital for Children NHS Foundation Trust
Study design
Observational model
COHORT
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
No minimum to 18 Years
Healthy volunteers
No
Inclusion criteria
* Radiological diagnosis of moyamoya
Exclusion criteria
* Refuse consent
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Number of children with moyamoya in UK | 2 years |
Secondary
| Measure | Time frame |
|---|---|
| clinical features & outcomes of childhood moyamoya | 2 years |
| radioplogical features of childhood Moyamoya | 2 years |
Countries
United Kingdom
Outcome results
None listed