Cancer, Infertility, Quality of Life
Conditions
Brief summary
The survey analyses how to improve the decision-making process for fertility preservation in the pediatric population based on 1. patient and parent feelings about fertility preservation counselling 2. influence of the emotional state of patients and parents on fertility preservation acceptance 3. support of medical staff and family The study revealed that attention to the fertility preservation pathways was important for the satisfaction of patient's and parent's expectations
Detailed description
Questionnaire survey via regular mail to an eligible population (boys and adolescents aged 0 to 18 years diagnosed with cancer at the Cliniques universitaires Saint Luc) between January 2005 and May 2013. Three different questionnaires, for children (\<12 years and 12-18 years) and parents respectively, established based on information from focus groups and subsequently reviewed by the institutional ethics board before being sent.
Interventions
OTHERsurvey
questionnaire survey sent by regular mail for 3 groups
Sponsors
Cliniques universitaires Saint-Luc- Université Catholique de Louvain
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Healthy volunteers
No
Inclusion criteria
* prepubertal boys and adolescents diagnosed with cancer in a university hospital setting between january 2005 and may 2013
Exclusion criteria
* none
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| factors improving the decision-making process for fertility preservation | less than 1 year | factors improving the decision-making process for fertility preservation assessed by three specific questionnaires (parent, adolescent and children) |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| patient and parent feelings about fertility counseling | less than 1 year | patient and parent feelings about fertility counseling assessed by three specific questionnaires (parent, adolescent and children) |
| influence of the emotional state of parents and patients on fertility preservation acceptance | less than 1 year | influence of the emotional state of parents and patients on fertility preservation acceptance assessed by three specific questionnaires (parent, adolescent and children) |
| support of medical staff and family | less than 1 year | support of medical staff and family assessed by three specific questionnaires support of medical staff and family (parent, adolescent and children) |
Outcome results
None listed