Brain Cancer, Glioblastoma
Conditions
Keywords
Communication, Physicians, Patients, Caregivers, 15-034
Brief summary
The purpose of this study is to learn more about the way physicians communicate with brain tumor patients. This study will look at how oncologists provide information about brain tumors, brain scan results, and treatment options. This study will look at how oncologists provide information about brain tumors, brain scan results, and treatment options. Ultimately, the investigators hope to use these findings to improve communication between patients, caregivers and their doctors.
Interventions
BEHAVIORALpsychometric tests, questionnaires and neurocognitive assessments
Sponsors
Memorial Sloan Kettering Cancer Center
Weill Medical College of Cornell University
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
Patient Inclusion Criteria: * 18 years or older * Pathologic diagnosis of WHO grade IV glioma, as per MSKCC medical record or outside medical record. * In the judgment of the consenting professional, proficiency in English that will allow the participant to be able to complete study questionnaires and assessments. Many of the study assessments are available only in English. * At the time of consent, orientation to self, place, month and year Caregiver Inclusion Criteria: * 18 years or older * Identified by the patient as a relative, friend, or partner with whom he or she has a significant relationship and who provides him or her informal (unpaid) care (i.e., physical or emotional assistance). * In the judgment of the consenting professional, proficiency in English that will allow to complete study questionnaires and assessments. Many of the study assessments are available only in English. Oncologist Inclusion Criteria: * Treating Neuro-Oncologist in the Department of Neurology
Exclusion criteria
Patient
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| number of responses from patients, to 3 yes/no questions | 2 years | The curability of the patient's cancer (curability) The patient's prognosis (prognosis)The patient's goals of care should his/her condition worsen and he/she becomes critically ill (EOL) |
| number of responses from caregivers to 3 yes/no questions | 2 years | The curability of the patient's cancer (curability) The patient's prognosis (prognosis)The patient's goals of care should his/her condition worsen and he/she becomes critically ill (EOL) |
| number of responses from physicians to 3 yes/no questions | 2 years | The curability of the patient's cancer (curability) The patient's prognosis (prognosis)The patient's goals of care should his/her condition worsen and he/she becomes critically ill (EOL) |
Countries
United States
Contacts
PRINCIPAL_INVESTIGATOREli Diamond, MD
Memorial Sloan Kettering Cancer Center
Outcome results
None listed