Neuropsychological and Psychosocial Follow up of Children and Adolescents With Neuromuscular Disease

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT02253290

Enrollment

300

Registered

2014-10-01

Start date

2014-12-31

Completion date

2025-04-30

Last updated

2024-07-03

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Neuromuscular Diseases

Brief summary

This project is a retrospective and prospective investigation of neuropsychological and psychosocial development of children with a neuromuscular disease.

Detailed description

This project is a retrospective and prospective investigation of neuropsychological and psychosocial development of children with a neuromuscular disease. Children and adolescents in UZ Leuven will be evaluated according to a psychosocial and neuropsychological protocol including different psychological tests and patient questionaires.

Interventions

None listed

Study design

Observational model

COHORT

Time perspective

OTHER

Eligibility

Sex/Gender

ALL

Age

No minimum to 18 Years

Healthy volunteers

Inclusion criteria

* children and adolescents (0-18 years) * diagnosis of neuromuscular disease

Design outcomes

Primary

Measure	Time frame	Description
Neuropsychological profile (questionnaires, neuropsychological testing) of children with myotonic dystonia type 1	one year	Compare the outcome of the questionnaires, IQ test and other neuropsychological test to a normal population

Countries

Belgium

Contacts

Primary ContactSam Geuens, Master

sam.geuens@uzleuven.be+32 16 34 19 91

Outcome results