Adult Patients With Neuromuscular Disorders Using Wheelchair
Conditions
Keywords
Neuromuscular, Wheelchair, Pain, Bedsore, Trouble postural
Brief summary
A retrospective study with the patients having a positioning consultation at hospital, between 2009 and 2014. In every neuromuscular disorder, the investigators describe the population seen in consultation, the aim of consultation, the postural problem observed in wheelchair, pain when sitting in wheelchair, and pressure ulcer.
Detailed description
Postural problem is described with MCPAA (Measure of Postural Control in Sitting Position, created by B. GAGNON, physiotherapist in Quebec) : we look at pelvic obliquity, pelvic rotation, pelvic anteversion or retroversion, trunk slope and rotation, kyphotic or scoliotic posture, neck posture and legs posture. We evaluate if these deformities are soft, moderate or severe, and if they are relievable
Interventions
OTHERPositioning consultation
Assessment of pain,bedsores and postural troubles
Sponsors
Fondation Garches
Association Française contre les Myopathies (AFM), Paris
Centre d'Investigation Clinique et Technologique 805
Study design
Observational model
COHORT
Time perspective
RETROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
* Adult patient with neuromuscular disorder * using wheelchair * Patient having a positioning consultation in GARCHES Hospital
Exclusion criteria
* refusal to participate to the protocol * pregnancy
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Postural disorders | 2h |
Secondary
| Measure | Time frame |
|---|---|
| Number of patient with Pain | 15 minutes |
Other
| Measure | Time frame |
|---|---|
| Bedsores | 15 minutes |
Countries
France
Outcome results
None listed