Natural History of Cherubism Observational Study

Natural Hisotry of Cherubism Observational Study

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT01916772

Enrollment

Registered

2013-08-06

Start date

2013-07-31

Completion date

2016-09-30

Last updated

2017-01-10

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Cherubism

Keywords

cherubism, bone tumors

Brief summary

To observe the natural history of cherubism.

Detailed description

The investigators will take a history and examine patients with cherubism to determine the natural history of the disease. The investigators also may take skin or blood samples (IRB approved 7256) from patients to learn more about this disorder.

Interventions

OTHERno interventions

no interventions

Study design

Observational model

COHORT

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Healthy volunteers

Yes

Inclusion criteria

patients with cherubism

Exclusion criteria

patients without cherubism

Design outcomes

Primary

Measure	Time frame	Description
Disease progression	10 years	We will take a history and examine patients with cherubism and look for disease progression.

Secondary

Measure	Time frame	Description
patient growth	10 years	We will measure height and weight
bone abnormalities	10 years	We will take panorex radiographs.

Countries

United States

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026