End Stage Kidney Disease
Conditions
Keywords
Living kidney donation, End-stage renal disease, Latinos, Undocumented Immigrants, Bilingual, Spanish, Website, Dialysis, Hispanics, Transplantation
Brief summary
The purpose of this study is to increase understanding about living kidney donation (LKD) among Hispanic/Latino patients and public by increasing knowledge and positive attitudes about LKD. Improving Hispanics' understanding about LKD will ensure that Hispanic patients and public are fully informed of the treatment options for End Stage Kidney Disease.
Detailed description
The shortage of kidneys for transplantation, and ethnic disparities in living kidney donation rates are major public health problems. Hispanics need more kidney transplants, yet receive fewer living donor kidney transplants than they need. Factors known to contribute to Hispanics' low rates of living donation kidney transplantation include cultural beliefs, lack of knowledge, and negative attitudes about living kidney donation. Web-based interventions are promising as Hispanics are using the Internet at increasingly greater rates. However, few websites about transplantation are tailored to potential Hispanic kidney transplant candidates or the Hispanic community. This study aims to develop, test, and evaluate the effectiveness of a bilingual web-based educational resource targeted to Hispanic patients and the public, which can serve as a low-cost, convenient, and culturally competent tool to enhance knowledge about living kidney donation. Improving Hispanics' understanding about living kidney donation will promote their autonomy and self-determination by helping to ensure that Hispanic patients and public are fully informed of the treatment options for end-stage kidney disease.
Interventions
BEHAVIORALWebsite Intervention
Study participants will take the self-administered pre-test in the intervention arm and will be introduced to the website to inform the public of various topics concerning end-stage kidney disease and kidney transplantation. Few websites about transplantation are tailored to potential Hispanic kidney transplant candidates or the Hispanic community. This website is designed to fill the void and be an effective bilingual web-based educational resource targeted to Hispanic patients and public which can serve as a culturally competent tool to enhance knowledge and attitudes about living kidney donation.
Sponsors
Northwestern University
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
HEALTH_SERVICES_RESEARCH
Masking
SINGLE (Investigator)
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* Adults (age ≥ 18 years) * Hispanics/Latinos * ESRD patients who are scheduled to attend each participating transplant center's education sessions. Sessions mark the first phase of evaluation in order for patients to get wait listed for a transplant or for others to become a living kidney donor. * Family and friends who accompany patients to the transplant center. * Identification as Hispanic/Latino. * Ability to come to Northwestern 3 hours prior to the scheduled education session. * Ability to read. Reading ability will be assessed using the 5-point Likert scale question validated in English and Spanish:13 How often do you need to have someone help you when you read instructions, pamphlets, or other written material from your doctor or pharmacy? People will be included if they reply 1-Never or 2-Rarely.
Exclusion criteria
* Non-identification as Hispanic/Latino. * Inability to come to Northwestern 3 hours prior to the scheduled education session. * Individuals who are not able to read Spanish or English. People will be excluded if they reply 3-Sometimes, 4-Often, and 5-Always to the question, How often do you need to have someone help you when you read instructions, pamphlets, or other written material from your doctor or pharmacy? .
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Knowledge about Living Kidney Donation | 3 weeks | Will assess change in knowledge and positive attitudes about risks, benefits, processes, and cultural factors associated with living kidney donation over time, and their associations with participant characteristics (i.e., age, literacy). |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Website use and satisfaction | 3 weeks | Will assess satisfaction and use of website 3 weeks after enrollment. |
Countries
United States
Outcome results
None listed