Non-CF Bronchiectasis, Nontuberculosis Mycobacteria (NTM)
Conditions
Brief summary
The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple clinical institutions.
Detailed description
The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple clinical institutions. The goal of the Bronchiectasis Research Registry is to support collaborative research and assist in the planning of multi-center clinical trials for the treatment of NTM and non-CF Bronchiectasis, a progressive, non-curable disease of the lungs, which afflicts thousands of patients. The Registry will also be used to provide better insight into the study of the different types of Bronchiectasis, as well as the pathophysiology of the disorder. In 2012, in collaboration with NTM Info and Research, Inc (NTMir) and the consortium members, the COPD Foundation expanded the Bronchiectasis Research Registry to enroll patients with non tuberculous mycobacteria (NTM) only. Prior to this time, the registry included individuals with Bronchiectasis, with or without NTM.
Interventions
None listed
Sponsors
COPD Foundation
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
18 Years to 120 Years
Healthy volunteers
Yes
Inclusion criteria
* Over the age of 18 * non-CF Bronchiectasis * Nontuberculosis Mycobacteria (NTM)
Exclusion criteria
* Under the age of 18 * CF Bronchiectasis
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Patient Recruitment and Data analysis | December 2050 | The COPD Foundation expects to assist at least 4 researchers (with patient recruitment and/or data analysis) annually. |
Countries
United States
Contacts
Primary ContactDelia Prieto
Outcome results
None listed