Support of the Family as a Caregiving System
Conditions
Keywords
practice nurse, clinical Nurse, inpatient staff, inpatient social worker, didactic training sessions, 13-030
Brief summary
The purpose of this study is to provide a communication training program to inpatient nurses and social workers at Memorial Sloan Kettering Cancer Center in order to help them assist caregiving families. The importance of this training program is that it aims to teach nurses and social workers how and when to respond more effectively and compassionately to challenges faced by caregiving families. One of the goals of this program is to address family support needs during a patient's hospitalization.
Interventions
BEHAVIORALWorking with the Caregiving Family (WCF) training
Training curriculum will be comprised of 2 phases to be attended sequentially: (l) The Didactic Phase will consist of 6 twice a month seminars, administered over a 3 month period. Each seminar includes a 1 hour lecture \& discussion followed by 1 hour of role-play exercises; Lecture segments may include short training videos which Dr. Zaider uses in the nurses' training module she teaches through the Communication Skills Laboratory. The teaching portion of the didactic sessions of the training may also be videotaped as a reference point for curriculum review. Will explain to the providers that videotapes will only be available to study staff \& that the role play portion will not be recorded; (2) Consolidation Phase will consist of 6 twice a month peer-group supervision meetings for ongoing consultation on family cases, also held across a 3 month period. Length of these consolidations sessions will be up to 2 hours.
BEHAVIORALquestionnaires
Sponsors
Memorial Sloan Kettering Cancer Center
Ackerman Institute for Family
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
12 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
* Participating Providers: * Provider is an MSKCC acute care advanced practice nurse and/or inpatient social worker as per self-report. * Plans to attend at least 4/6 the didactic training sessions, and 3/6 consolidation sessions as per self-report. A patient will be approached if: * Patient has been admitted to an inpatient service at MSKCC. * Patient is able to designate at least one close person who is involved in the patient's care and is willing to participate. In the case that the patient is a minor (age 7-17 yrs), s/he will need to designate at least one close, adult person who is involved in the patient's care and is willing to participate. Family members will be approached if: * They were identified as a close other (including a family friend) involved in the care of an admitted patient on a participating provider's floor
Exclusion criteria
* Evidence of cognitive impairment severe enough to preclude completing survey instruments as per clinical or research staff judgment or EMR. * Determined to not be appropriate for this study as per clinical judgment. Anyone, patient or family member, who is younger than 12 years old. * Anyone, patient or family member, who does not speak English.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Provider outcomes | 2 years | which include observed changes in skills (Family Skills Adherence Scale) and subjective confidence level (Confidence in Family Skills Questionnaire) in conducting a family-centered psychosocial consultation with a caregiving family |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| patient and/or family members'outcomes | 2 years | which include caregivers' satisfaction with aspects of psychosocial care (Satisfaction with Emotional Support Scale measure), perceived quality of communication about illness (Family Session Communication Measure) and perceived alliance with the participating nurse or social worker (Family Alliance Scale) |
Countries
United States
Contacts
PRINCIPAL_INVESTIGATORTalia Zaider, PhD
Memorial Sloan Kettering Cancer Center
Outcome results
None listed