Amyotrophic Lateral Sclerosis
Conditions
Keywords
Amyotrophic Lateral Sclerosis, Lou Gehrig's Disease, Motor Neuron Disease
Brief summary
The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.
Detailed description
The National ALS Registry's Research Notification System allows person with ALS to participate in clinical trials.
Interventions
None listed
Sponsors
Centers for Disease Control and Prevention
US Department of Veterans Affairs
Centers for Medicare and Medicaid Services
Study design
Observational model
OTHER
Time perspective
OTHER
Eligibility
Sex/Gender
ALL
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
\- U.S. citizens 18 years of age or older
Exclusion criteria
\-
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| The National Amyotrophic Lateral Sclerosis (ALS) Registry | 1 year | To determine the incidence and prevalence of Amyotrophic Lateral Sclerosis in the US. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Risk factors of ALS | 1 year | To learn more about the potential risk factors for ALS |
Countries
United States
Contacts
CONTACTPaul Mehta, MD
CONTACTKevin Horton, DrPH, MSPH
PRINCIPAL_INVESTIGATORPaul Mehta, MD
Centers for Disease Control and Prevention
Outcome results
None listed