First Episode Psychosis and Pathway to Care in Nordland

Patients and Carers Experiences With First Episode Psychosis and Pathway to Care in Nordland: A Qualitative Study

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT01753284

Enrollment

Registered

2012-12-20

Start date

2013-01-31

Completion date

2018-12-31

Last updated

2019-05-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

First Episode Psychosis

Brief summary

First episode psychosis patients often experiences treatment delay. This reduces their prospects for recovery and makes unnecessary burdens for them and their carers. A better understanding of help seeking intentions is required, and has not been explored in a county like Nordland, Norway, with long distances and challenging access to health services. The purpose of this study is to explore the process of help seeking, including how patients and their careers discover and understand the psychotic symptoms. Research exploring the impact on families mainly focuses on parents' experiences, and there are less studies focusing on experiences and needs of siblings. This study will therefore explore siblings' experiences separate from their parents. Methods will be qualitative interviews with patients, their carers and siblings. Analysis will be influenced by Grounded theory.

Interventions

None listed

Study design

Observational model

CASE_ONLY

Time perspective

RETROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

16 Years to 35 Years

Healthy volunteers

Inclusion criteria

* age 16-35, * understand and speak Norwegian * able to give consent * no learning disabilities

Design outcomes

Primary

Measure	Time frame
Patient experience	up to 100 weeks
Carers experiences	up to 100 weeks
Siblings experiences	up to 100 weeks
Pathway to care	up to 100 weeks

Outcome results