Neurofibromatosis Type 1
Conditions
Keywords
Neurofibromatosis
Brief summary
The study will seek to determine whether there is a corresponding deficit in school performance for teenagers with NF1. Secondly, the study seeks to explore the issue of self-esteem in teenagers with NF1.
Interventions
None listed
Sponsors
John Jay High School
Study design
Observational model
COHORT
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
14 Years to 17 Years
Healthy volunteers
Yes
Inclusion criteria
* Clinical diagnosis of Neurofibromatosis Type 1
Exclusion criteria
* Neurofibromatosis Type 2 * Schwannomatosis
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Evidence of effect on self-esteem evidenced by self-esteem scores | 4 months |
Countries
United States
Contacts
Primary ContactChris Ramsay
Outcome results
None listed