Cancer Survivor
Conditions
Keywords
cancer survivor
Brief summary
This is a randomized controlled trial of a web-based informational intervention (UMFollowUp) for adolescent and young adult survivors of childhood cancer to improve cancer knowledge and psychosocial functioning.
Detailed description
Individuals randomly assigned to the control group will receive standard of care for the duration of their participation. This means they will continue to receive information regarding their diagnosis, treatments and ongoing health needs from their provider (no access to website). Individuals randomly assigned to the treatment group will receive access to UMFollowUp, a secure, HIPAA-compliant website. All participants will be asked to complete paper-and-pencil surveys at baseline and 9 months later to determine the impact of the web-based intervention.
Interventions
BEHAVIORALUMFollowUp
Web-based internet resource for self-reported treatment summaries and psychosocial and physical well-being.
OTHERStandard of Care
Patients will receive information regarding their diagnosis, treatments, and ongoing health needs from their provider, but will not be provided access to the website.
Sponsors
Masonic Cancer Center, University of Minnesota
Study design
Allocation
RANDOMIZED
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
15 Years to 28 Years
Healthy volunteers
No
Inclusion criteria
* History of diagnosis of hematologic malignancy or malignant neoplasm, and in disease free remission at time of recruitment. * Must be English-speaking and have access to a computer with internet access, and must have completed treatment at University of Minnesota Medical Center-Fairview for cancer.
Exclusion criteria
* Individual with significant visual impairments and neurologic/cognitive difficulties which limit their ability to see and under our outcome questionnaires or website content will be excluded from participation.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Cancer Knowledge Survey | Time of Enrollment and 9 Months Later | Measure of patient reported knowledge of their cancer diagnosis, history and treatments. |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Cancer Rehabilitation Evaluation System | Time of Enrollment and 9 Months Later | Short Form (SF) Medical Interaction Subscale |
| Herth Hope Index | Time of Enrollment and 9 Months Later | A measure of self-reported hope. |
| SF-36 Questionnaire | Time of Enrollment and 9 Months Later | A measure of quality of life. |
| Health Locus of Control Scale | Time of Enrollment and 9 Months Later | A measure of self-reported locus of control. |
| State Trait Anxiety Inventory | Time of Enrollment and 9 Months Later | A measure of self-reported anxiety. |
| Multidimensional Scale of Perceived Social Support | Time of Enrollment and 9 Months Later | A measure of self-reported social support. |
Countries
United States
Outcome results
None listed