CAre of Patients With PArenteral Nutrition At Home

Prospective Non-interventional Non-controlled Multicenter Observational Study to Evaluate the Quality of Care for Adult Patients on Home Parenteral Nutrition (HPN)

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT01545063

Acronym

CAPANAH

Enrollment

Registered

2012-03-06

Start date

2012-05-31

Completion date

2013-04-30

Last updated

2017-07-19

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Chronic Diarrhea, Crohn's Disease, Intestinal Lymphomas, Peritoneal Carcinomatosis With Intestinal Occlusion, Radiation Enteritis

Brief summary

This research aims to give an overview of a number of aspects related to the quality of care for adult patients on home parenteral nutrition. Concretely this study follows up different aspects on different moments in the care of the patient pathways: * process indicators concerning indication, parenteral nutrition, training, team access roads and the succession of complications * Outcome indicators * the health-related quality of life * discrepancies in medication use * the role of the different health care providers

Detailed description

Adult patients on HPN will be contacted by phone at three different time moments after their discharge to ask them about indicators, quality of life and discrepancies in medication use. After the follow-up, medical dossiers will be consulted to know which indicators are followed in practice. The role of the different health care providers will be investigated by face-to-face interviews with different healthcare professionals.

Interventions

None listed

Study design

Observational model

OTHER

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

18 Years to No maximum

Healthy volunteers

Inclusion criteria

* Patients in Flanders who speak Dutch, are older then 18 years and are able to give an informed consent.

Exclusion criteria

* Patients who are younger then 18 years.

Design outcomes

Primary

Measure	Time frame	Description
Quality of life	2 years	Quality of life will be investigated with the HPN-QoL(r) or FACIT-G (r).
Number of catheter related infections	2 years	—

Countries

Belgium

Outcome results