Autism, Brain Injury, Cerebral Palsy, Down's Syndrome
Conditions
Keywords
Children, Rehabilitation, Family Functioning, Mental Health, Costs, Integration
Brief summary
The objective of the study is to compare the usual care and treatment of children and youth (0-19 years) with multiple developmental delays and disabilities and their families in Simcoe York with a co-ordinated, navigated approach to care using the Children's Treatment Network (CTN) services.
Detailed description
The Children's Treatment Network (CTN)links existing children's services rather than creating a new Centre. The purpose of the evaluation is to compare the effectiveness and efficiency of this service with the usual care that people receive. 500 Children will be randomized to receive either usual care (250) or the co-ordinated, navigated care from CTN (250). The primary question to be addressed is whether the more integrated CTN model of service improves family-centered services, parent mental health, parenting, family function and the quality of the child's life and the families resource needs as well as reduce expenditures for the families' use of all other health and social services compared to the outcomes of usual care alone. What children and families with what characteristics and circumstances most benefit from which approach to the treatment of childhood disability in Simcoe-York? At what cost? Agencies providing services to children will be evaluated as to how effective their integration of teams are functioning, their partnership with each other and capacity building in the community.
Interventions
OTHERCTN model of care for children and their families
Parental reports on the quality of life of their children and service needs
Sponsors
McMaster University
Children's Treatment Network
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
HEALTH_SERVICES_RESEARCH
Masking
DOUBLE (Investigator, Outcomes Assessor)
Eligibility
Sex/Gender
ALL
Age
1 Minutes to 19 Years
Healthy volunteers
No
Inclusion criteria
* Children and youth up to 19 years of age * living in Simcoe-York. * English speaking * multi-need family * children on agency service wait lists * children under the care of Children's Aid Societies * Families with more than 1 disabled child
Exclusion criteria
-youth over 19 years.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Parental reports in the Quality of Life of Children and Youth | 12 and 24 month | Parent report of family centred processes of care (MPOC) Parent mental health Parent perceived social support |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Integration of teams amongst service providers. Integration was measured at two levels using the Integration of Human Services Measure. | 12 months and 24 months | The measure evaluates observed and expected depth of integration among service providers. CEO or senior manager participation in the Network was measured. |
Countries
Canada
Outcome results
None listed