Autistic Disorder
Conditions
Keywords
Family Navigator, Autistic Disorder, Early Intervention, Developmental Disabilities, Child Development Disorders
Brief summary
The purpose of this study is to see whether or not Family Navigators, who 1 ) help families after their child is diagnosed with autism and help them get autism specific services for their child 2) help families identify barriers to obtaining these services and 3) help families problem solve to overcome these barrier, are helpful to parents of a child newly diagnosed with an Autism Spectrum Disorder.
Interventions
OTHERFamily Navigator
Families in the intervention group will receive approximately six sessions with a Family Navigator. The Family Navigator will: 1. Help family identify key issues they need to address to get their child autism-specific services 2. Help family address barriers to obtaining these services and strategize approaches to overcome them.
Sponsors
Boston Medical Center
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
SUPPORTIVE_CARE
Masking
SINGLE (Outcomes Assessor)
Eligibility
Sex/Gender
ALL
Age
15 Years to 64 Years
Healthy volunteers
No
Inclusion criteria
* Child with a new confirmed diagnosis of Autism Spectrum Disorder * Child is under 8 years of age * Parent is the mother, father and/or legal guardian of the child and identifies themselves as the primary caregiver * Primary caregiver speaks English, Spanish, Haitian Creole, Somali, Vietnamese, Portuguese or Chinese
Exclusion criteria
* Parent or legal guardian has psychosis * Parent or legal guardian endorses suicidal ideation * Parent or legal guardian actively using illicit drugs * Parent or legal guardian expected to leave area within 6 months
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Hours of Services | 6 months after enrollment | Mean number of autism-specific service hours received per week |
| Receipt of adequate services | 6 months after enrollment | As defined by 25 hours/week |
| Time to Receipt of Services | 6 months after enrollment | Difference between the date of the IEP/IFPS and date the child first received services |
Secondary
| Measure | Time frame | Description |
|---|---|---|
| Family Psychological Functioning | 6 months after enrollment | * Quick Inventory of Depressive Symptomatology-Self Rated (QIDS-SR). * Parenting Stress - Short Form (PSI) * Perceived Stress Scale- Self-Report (PSS) * Medical Outcomes Study Social Support (MOS-SS) |
Countries
United States
Outcome results
None listed