Gastroparesis
Conditions
Keywords
Gastroparesis, Quality of Life
Brief summary
The project will involve conducting a Needs Assessment for Gastroparesis patients and their caregivers with the goal of identifying quality of life issues associated with this disease. Identifying these issues will ameliorate management and support systems for gastroparesis currently existent in the community and, hopefully, provide information for the establishment of more resources to assist the patients and their families.
Detailed description
This project will involve: a) distributing questionnaires to up to 200 participants (100 patients and 100 caregivers) at the Shands Gastrointestinal clinic and b) focus groups including patients, medical provider, and the clinic case manager. The questionnaires will provide information on the relative effect of gastroparesis on the quality of life of the patients and their caregivers. Assessment of this needs assessment will then help identify areas of potential resource improvement and mobilization to provide support for the patients and their family members.
Interventions
None listed
Sponsors
University of Florida
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Healthy volunteers
Yes
Inclusion criteria
* Gastroparesis patients at the GI clinic of Shands Hospital at the University of Florida * Caregivers to Gastroparesis patients at the GI clinic of Shands Hospital at the University of Florida
Exclusion criteria
* Inability to fill out the questionnaires by any cause
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Score in a Quality of life assessment Questionnaire | During the clinicial visit at the day of enrollment(Day 1) |
Secondary
| Measure | Time frame |
|---|---|
| Score in a Quality of life assessment Questionnaire | 1st follow-up, at 6 months from Date of enrollment |
Countries
United States
Outcome results
None listed