Needs in Education for Pulmonary or Cardiopulmonary Transplanted Cystic Fibrosis Patients

Assessing of the Educational Needs of Patients Who Received a Lung Transplantation or a Simultaneous Heart-lung Transplantation for Mucoviscidosis

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT01285895

Enrollment

Registered

2011-01-28

Start date

2009-09-30

Completion date

2013-10-31

Last updated

2015-04-15

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Cystic Fibrosis

Keywords

Lung and heart transplantations, Mucoviscidosis, Educational needs

Brief summary

Main objective : This project aims to assess the educational needs of patients who received a lung transplantation or a simultaneous heart-lung transplantation for mucoviscidosis. Specific objectives : Evaluate the specific needs dependent on seniority transplantation : 3 to 6 months, 6 months to 2 years, more than 2 years after transplantation Secondary objectives : * Assess the state of health * Assess the knowledge * Assess gestural know-how * Assess the cognitive know-how * Assess the behaviour adopted in reality by the patient * Assess motivation psychosocial factors of : * self-efficacy and inefficiency * representation of obstacles, disadvantages of treatment * sense of control over their health * feeling of being supported by health professionals, by his close * representation of his responsibility to take care of his health, to follow his treatment, to be active about his treatment

Interventions

None listed

Study design

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

18 Years to No maximum

Healthy volunteers

Inclusion criteria

* Patients who received a lung transplantation or a simultaneous heart-lung transplantation for mucoviscidosis

Exclusion criteria

* Patient with a psychiatric disorder * Patient in intensive care * Palliative patient * Patient aged under 18 years old * Patient refusal

Countries

France

Outcome results