Study of the Health Information Needs of Brain Cancer Patients

Informed Brain Cancer Patients

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT01130220

Enrollment

Registered

2010-05-25

Start date

2010-05-31

Completion date

2011-12-31

Last updated

2012-07-25

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Brain Tumor

Keywords

Brain Tumor, Brain Neoplasm

Brief summary

The purpose of this research is to explore the factors involved in brain cancer health care literacy needs.

Detailed description

A mere subset of the reasons behind unmet health care literacy needs include the health care systems' increasing complexity, increased time constraints, profound treatment decision making requirements, decreased financial resources, fracturing social networks and diversifying educational and cultural needs. This project will use focus groups to explore the factors involved in brain cancer health care literacy from the perspectives of patients and those involved in their care. Hypothesis generated from this project will be directly applied toward future projects. The overarching goals are improved access and adequacy of health care literacy information through the eventual development of validated, useful, reliable health care literacy information tools for brain cancer patients and those involved in their care.

Interventions

OTHERFocus Group

A single focus group will be held until a saturation of themes has been identified.

Study design

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

18 Years to 89 Years

Healthy volunteers

Inclusion criteria

BRAIN TUMOR PATIENTS: * 18 to 89 years of age * Have or have had any type of brain tumor * Ability to communicate in English * Willingness to participate in a 30-60 minute focus group HEALTH CARE PROVIDERS: * 18 to 89 years of age * Be a health care provider who cares for any type of brain tumor * Ability to communicate in English * Willingness to participate in a 30-60 minute focus group

Exclusion criteria

* None

Design outcomes

Primary

Measure	Time frame	Description
Explore the factors involved in health care literacy from the perspective of brain cancer patients.	1 Year	An investigator experienced in semi-structured focus group research will faclitate focus group sessions by using a generalized list of topics and open-ended discussion questions.

Secondary

Measure	Time frame	Description
Explore the factors involved in health care literacy from the perspective of health care providers.	1 Year	An investigator experienced in semi-structured focus group research will faclitate focus group sessions by using a generalized list of topics and open-ended discussion questions.

Countries

United States

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026