Advanced Cancer
Conditions
Keywords
advance care planning, cancer
Brief summary
The purpose of this study is to study whether preferences for the goals of care for 80 subjects with end-stage cancer are altered after viewing a video outlining the goals of care compared to their initial preferences after hearing a verbal description of the goals of care alone.
Detailed description
The purpose of this study is to study whether preferences for the goals of care for 80 subjects with end-stage cancer are altered after viewing a video outlining the goals of care compared to their initial preferences after hearing a verbal description of the goals of care alone. Subjects will choose among three goals of care, life prolonging care, basic medical care, and comfort care.
Interventions
BEHAVIORALvideo
outline of the goals of care
Sponsors
Massachusetts General Hospital
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
HEALTH_SERVICES_RESEARCH
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
21 Years to No maximum
Healthy volunteers
No
Inclusion criteria
1. Terminal, progressive cancer with poor prognosis whose treatment intent is palliative, based on the following definition: * All patients with brain cancer, liver cancer, inoperable non-small cell lung carcinoma, pancreatic cancer, or gallbladder cancer; OR * Patients with the following cancers: metastatic colon cancer or stage III or IV non-small cell lung cancer; OR * Patients with the following cancers, if first-line therapy has failed and limited response is expected to second-line therapy: breast cancer, colorectal cancer, head and neck cancer, stomach cancer, esophageal cancer, melanoma, leukemia, ovarian cancer, prostate cancer, renal cancer, sarcoma, lung cancer, myeloma, or lymphoma. * The terms terminal, progressive, poor prognosis, palliative intent and limited response will be judged by the patient's oncologist (and not by the RSA or consenting professional). 2. Return patient visit (defined as a patient known to the oncologist from previous assessments and treatments, where the working and personal relationship has been established and not a new patient to the clinic). 3. English speaking. Only English-speaking patients will be included in our present study since English is the validated language of our study tools. 4. Given the sensitive nature of the study, clinicians will decide whether the patient is a potentially appropriate subject based on their knowledge of the patient. 5. Able to provide informed consent. 6. Age greater than or equal to 21.
Exclusion criteria
1. MMSE \< 25. 2. Psychological state not appropriate for end-of-life discussion as determined by the treating clinician.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| end of life preference at time of interview | 5 minutes after survey |
Secondary
| Measure | Time frame |
|---|---|
| knowledge | 5 minutes after survey |
| decisional conflict | 5 minutes after survey |
Countries
United States
Outcome results
None listed