Breast Cancer, Cancer Survivor
Conditions
Keywords
stage I breast cancer, stage II breast cancer, stage IIIA breast cancer, stage IIIB breast cancer, stage IIIC breast cancer, stage IV breast cancer, cancer survivor
Brief summary
RATIONALE: A study that evaluates successful Los Angeles-based, peer-led African American breast cancer survivor support groups may help in developing a guide on how to organize and maintain breast cancer support groups. PURPOSE: This clinical trial is studying support groups for African-American breast cancer survivors.
Detailed description
OBJECTIVES: * Characterize five established Los Angeles (LA)-based, peer-led African American Breast Cancer Survivor (AABCS) support groups by identifying and evaluating the successful elements of structure and process that distinguish these groups: the purpose and goals; theories and techniques that are utilized; the structure of the group and implementation of specific goals; the cultural aspects that are incorporated to enhance the efficacy; and similarities and differences among these AABCS support groups. * Develop a preliminary Culturally Informed Breast Cancer Support Group Guide on how to organize and maintain support groups, modeled on the best model experiences of the five established LA-based support groups for AABCS. * Conduct three needs-assessment focus groups and 5 key informant interviews in the Inland Empire to evaluate the psychosocial needs and resources of AABCS in that region. OUTLINE: At least 10 support group leaders (2 from each support group) undergo semi-structured interviews to elicit information about the needs of breast cancer survivors in their community and the cultural modes of support that are given. Eight to twelve African American Breast Cancer Survivors (AABCS) participate in 5 focus group discussions and complete a questionnaire about their breast cancer and experience with support groups for qualitative and quantitative analysis. At least 5 Inland Empire community leaders undergo semi-structured interviews to elicit information about the needs of breast cancer survivors in their community. Eight to twelve AABCS from the Inland Empire participate in 3 focus group discussions and complete a questionnaire about their breast cancer and experience with support groups for qualitative and quantitative analysis.
Interventions
OTHERcommunication analysis
OTHERquestionnaire administration
PROCEDUREpsychosocial assessment and care
PROCEDUREsupport group therapy
Sponsors
National Cancer Institute (NCI)
City of Hope Medical Center
Study design
Masking
NONE
Eligibility
Sex/Gender
FEMALE
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
DISEASE CHARACTERISTICS: * Meets 1 of the following criteria: * African American Breast Cancer Survivor (AABCS) meeting 1 of the following criteria: * A member of 1 of the 5 support groups listed below * Live in the Inland Empire region of California * A cancer support group leader or facilitator of 1 of the 5 established support groups in Los Angeles: * Women of Essence (WOE) * Women of Color (WOC) * Support Sisters African American Breast Cancer Support Groups * Sisters * Celebrate Life * A community leader knowledgeable about breast cancer support services in the Inland Empire region PATIENT CHARACTERISTICS: * Not specified PRIOR CONCURRENT THERAPY: * Not specified
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Characterization of five established Los Angeles-based, peer-led African American Breast Cancer Survivor (AABCS) support groups | — |
| Preliminary Culturally-Informed Breast Cancer Support Group Guide on how to organize and maintain support groups | — |
| Completion of 3 needs-assessment focus group sessions and 5 key-informant interviews in the Inland Empire | — |
Countries
United States
Outcome results
None listed