Transition From Hospital to Home in Solid Organ Transplant (SOT)

The Transition From Hospital to Home in Parents of Solid Organ Transplant Recipients

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT00907023

Enrollment

Registered

2009-05-22

Start date

2009-01-31

Completion date

2011-05-31

Last updated

2011-11-10

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Solid Organ Transplant

Keywords

solid organ transplant, hospital discharge

Brief summary

The aim of this study is to determine the influences of discharge teaching and care coordination on how ready a parent is to take their child home from the hospital after a solid organ (kidney, heart and liver) transplant. This study will also look into how the parent handles coping, utilization of healthcare resources, and parent adjustment 3 weeks after discharge from the hospital.

Detailed description

Parents of children that have received a heart, kidney or liver transplant will be asked to participate in this protocol. Involvement in this study involves completion of questionnaires prior to the child being discharged from the hospital. Three weeks after discharge, there will also be a follow-up phone call to complete more questionnaires. Readiness for hospital discharge is a under-investigated topic in pediatric solid organ transplant patients, despite the increasing number of pediatric patients undergoing transplant surgery. Results from this study will be used to develop an intervention program to promote readiness for hospital discharge in parents of children who receive a solid organ transplant.

Interventions

None listed

Study design

Observational model

COHORT

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

No minimum to 18 Years

Healthy volunteers

Inclusion criteria

* parents of children who have undergo a heart, kidney, or liver transplant * English Speaking * Parents are 18 years of age or older

Exclusion criteria

* parents with significant cognitive or communication impairment that would not allow them to complete the questionnaires * parent whose child is receiving their 2nd or 3rd organ transplant

Design outcomes

Primary

Measure	Time frame
Determine the influences of care coordination and discharge teaching on readiness for discharge in solid organ transplant recipients	2 years

Secondary

Measure	Time frame
Determine the relationship of parent readiness for hospital discharge with coping, utilization of healthcare resources, medication adherence, and parent adjustment following hospital discharge	2 years

Countries

United States

Outcome results