Exploring Stress and Coping Behaviors of the Major Carer Whose Children With Prader-Willi Syndrome

Status

UNKNOWN

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT00808548

Enrollment

Registered

2008-12-16

Start date

2008-12-31

Completion date

2009-12-31

Last updated

2008-12-16

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Prader-Willi Syndrome

Keywords

stress, carer's experiences, Prader-willi syndrome, personal experiences

Brief summary

Ask the 4 carers of children with Prader-willi syndrome to disclose their experiences and difficulties for searching better management and intervention

Interventions

OTHERcounseling, emotional support

OTHERemotional support

emotional support during the interview

Study design

Observational model

CASE_ONLY

Time perspective

RETROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

6 Years to 12 Years

Healthy volunteers

Inclusion criteria

* a person who care and live with children with Prader-Willi syndrome

Exclusion criteria

* siblings or less-contact family * teachers

Design outcomes

Primary

Measure	Time frame
experience	one year

Countries

Taiwan

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026