Cancer
Conditions
Brief summary
In order to gain a greater understanding of the full experience of children with life-threatening illness, this study will provide video cameras to ten to fifteen 10-18 years olds in active treatment for cancer, and instruct them to make video illness narratives over the course of 1-3 months. The narratives will be studied as an intervention; each of the participants will be administered a measure of physical symptoms (the Memorial Symptom Assessment scale 10-18) and a measure of self-esteem (the Rosenberg Self-Esteem Scale). The video narratives will also be analyzed for content by theme in order to understand the participants' experiences in their own words. Our hypothesis is that these narratives will provide insight into the lives of children with cancer, increase their self-esteem, and decrease symptom distress, and improve communication between patients and their doctors.
Detailed description
In addition to the above outcome measures: The video narratives will also be analyzed for content by theme in order to understand the participants' experiences in their own words.
Interventions
BEHAVIORALVideo Illness Narrative
video
Sponsors
University of Rochester
Study design
Allocation
NA
Intervention model
SINGLE_GROUP
Primary purpose
SUPPORTIVE_CARE
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
10 Years to 18 Years
Healthy volunteers
No
Inclusion criteria
* Diagnosed with cancer * Age 10-18 * In active treatment for cancer * Followed at the Strong Memorial Hospital/Golisano Children's Hospital
Exclusion criteria
* Non-English Speaker * Cognitively impaired so as to make data collection difficult
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Memorial Symptom Assessment Scale | 3 months |
Secondary
| Measure | Time frame |
|---|---|
| Rosenberg Self Esteem Scale | 3 mopnths |
Countries
United States
Outcome results
None listed