Cancer
Conditions
Keywords
Needs Assessment Survey, Childhood Cancer Survivors, Parents, Primary Caregiver, Survey
Brief summary
Objectives: 1. To explore current lifestyle practices, health status, and quality of life among childhood cancer survivors and parent/guardians who are identified as primary caregivers. 2. To explore childhood cancer survivors' and primary caregivers' awareness of future health risks. 3. To explore interest in various lifestyle interventions and delivery channels among childhood cancer survivors and their primary caregivers. 4. To explore factors which may serve as mediators or moderators of future lifestyle interventions that target childhood cancer survivors and their primary caregivers, e.g., strength of the caregiver-child bond, geographic distance from one another, and level of education.
Detailed description
A mailed survey will be conducted that will assess the health behaviors (diet, exercise, and tobacco-use) of childhood cancer survivors, and the behaviors of identified primary caregivers (see definition under inclusion criteria). In addition, these surveys will assess awareness of longterm health risks, quality of life (QOL), strength of the child-caregiver bond, body image, body weight status, functional status, barriers to lifestyle change, and interest in various lifestyle interventions and potential channels for delivery. Mailed surveys (with telephone follow-up) will be sent to MDACC childhood cancer survivors diagnosed from 1998 - 2007 who are survivors of central nervous system (CNS) tumors, sarcomas, lymphoma or leukemia.
Interventions
OTHERSurvey
Survey packets to adult (\>18 years old) childhood cancer survivors who return to MDACC for follow-up appointments within the next 12-months and conduct a mailed survey with the remaining participants and their primary caregivers i.e. guardians of survivors who are currently under age 18.
Sponsors
M.D. Anderson Cancer Center
Study design
Observational model
CASE_ONLY
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
8 Years to 34 Years
Healthy volunteers
Yes
Inclusion criteria
1. Inclusion criteria for childhood cancer survivors: 1) diagnosed between 1992-2007 with central nervous system tumors, sarcomas, leukemia, or lymphoma; 2) off active treatment for at least six-months, and alive with no evidence of progressive disease; 3) currently between age 8 (i.e., at an age at which they could be reasonably expected to complete a survey and where validated instruments exist) and 34 (cutpoint based on the possibility that individuals were almost 18 in 1992 and decade has since passed); and 4) able to speak or read English. 2. Inclusion criteria for parents/guardians: 1) parents/guardians of childhood cancer survivors diagnosed from 1992-2007 with central nervous system tumors, sarcomas, leukemia, or lymphoma who completed active treatment at least six-months ago and who currently are alive with no evidence of disease; 2) parents/guardians of a survivor who is currently 2-34 years of age; 3) self-identified as the current primary caregiver of the survivor if the survivor is age 2-17 OR identified by the survivor as the primary caregiver if the survivor is age 18-34; and 4) able to speak or read English.
Exclusion criteria
1.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Patient Response Rate to Survey | 2 Years |
Countries
United States
Outcome results
None listed