Chronic Illness
Conditions
Keywords
young carers, family support, children (up to the age of 18) of chronically ill parents
Brief summary
The purpose of this study is to develop and implement evidence-based and family-oriented support for young carers and their families in Germany. Hypothesis is that families' own support mechanisms, combined with externally provided support that is determined by the families' specific needs, will help to overcome their burden and enable families to live in the way they wish to despite chronic illness. This will lead to a measurable increase in HRQOL of children concerned.
Interventions
OTHERsupport service
* professional partners for communication * befriending with other families concerned * information and education (about illness, symptoms, first aid, caring) * free-time activities and time out * homework assistance * administrative advise * support for everyday life
Sponsors
University of Witten/Herdecke
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
SUPPORTIVE_CARE
Masking
SINGLE (Investigator)
Eligibility
Sex/Gender
ALL
Age
8 Years to 18 Years
Healthy volunteers
No
Inclusion criteria
* children of mentally ill parents (chronic illness) * children of somatically ill parents (chronic illness)
Exclusion criteria
* children of drug addicted parents
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| health-related Quality of Life in children | study start and after 5 month of intervention |
Countries
Germany
Contacts
Primary ContactSabine Metzing-Blau, Dr.
Backup ContactJoerg grosse Schlarmann, MScN
Outcome results
None listed