Amyotrophic Lateral Sclerosis, Motor Neuron Disease, Neurodegenerative Disease
Conditions
Keywords
Amyotrophic Lateral Sclerosis, Cerebrospinal Fluid, Neurodegenerative Disease, Motor Neuron Disease, Autonomic Nervous System, Neurodegenerative Diseases, Movement Disorders, Quality of Life
Brief summary
The purpose of this study is : 1. To assess the ALS patient's satisfaction related to a hospital stay on the neurology floor of Hahnemann Hospital. 2. To compare the reported satisfaction of those individuals who stayed in a standard hospital room with those who stayed in Room 1455. Room 1455 is a room specifically set up with assistive technology related to environmental controls for individuals with disabilities. 3. To look at frequency of use of the various pieces of adaptive equipment.
Interventions
None listed
Sponsors
MDA/ALS Center of Hope
Drexel University College of Medicine
Study design
Observational model
CASE_ONLY
Time perspective
CROSS_SECTIONAL
Eligibility
Sex/Gender
ALL
Age
18 Years to 90 Years
Healthy volunteers
No
Inclusion criteria
* In-patients with probable or definite ALS, ages 18 - 90, staying on the neurology floor of Hahnemann Hospital
Exclusion criteria
* In-patients who do not meet the criteria of the diagnosis of ALS.
Design outcomes
Primary
| Measure | Time frame | Description |
|---|---|---|
| Patient Satisfaction | Period of Hospital Stay | Survey administered asks patients to rate their satisfaction with their hospital stay from Very Dissatisfied to Very Satisfied. Specific questions included satisfaction with hospital staff, quality of care, and comfort and accessibility of their room. |
Countries
United States
Outcome results
None listed