Breast Cancer
Conditions
Keywords
male breast cancer, recurrent breast cancer, stage I breast cancer, stage II breast cancer, stage IIIA breast cancer, stage IIIB breast cancer, stage IIIC breast cancer, stage IV breast cancer
Brief summary
RATIONALE: Identifying why patients don't do self care for lymphedema may help doctors plan better at-home self-care treatment. PURPOSE: This research study is looking at self-care practices for lymphedema in patients with breast cancer.
Detailed description
OBJECTIVES: Primary * To systematically identify and describe the barriers to completing recommended at home self-care of lymphedema in patients with breast cancer. * To identify patient recalled instructions as to at home self-care practices for lymphedema as told to them by healthcare professionals and others. * To identify the current at home self-care practices of breast cancer survivors with treatment treated lymphedema. Secondary * To examine the relationship between at home self-care activities and symptoms in breast cancer survivors with lymphedema. * To examine the relationship between at home self-care activities and quality of life in breast cancer survivors with lymphedema. * To identify patient-perceived benefits to at home self-care. OUTLINE: Patients complete questionnaires about their breast cancer diagnosis and treatment history, lymphedema history and problems, and years of education and income. Patients also complete surveys about home self-care practices for lymphedema and any benefits, burdens, or barriers of at home care.
Interventions
OTHERquestionnaire administration
Completed self-report form
OTHERsurvey administration
Completed self-report form-other
PROCEDUREquality-of-life assessment
Completed self-report form qol
Sponsors
National Cancer Institute (NCI)
Vanderbilt University
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
FEMALE
Age
18 Years to 120 Years
Healthy volunteers
No
Inclusion criteria
DISEASE CHARACTERISTICS: * History of breast cancer * Lymphedema in one or both arms that occurred during or after breast cancer treatment * Must have received prior lymphedema treatment by a healthcare professional * Patients with self-reported arm swelling subsequent to breast cancer treatment that has not been treated by a healthcare professional are not eligible * Hormone receptor status not specified PATIENT CHARACTERISTICS: * Menopausal status not specified * English speaking PRIOR CONCURRENT THERAPY: * See Disease Characteristics
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Identification and description of barriers to completing recommended at home self-care of lymphedema | one time only for approximately 15 minutes |
| Identification of patients recalled instructions as to at home self-care practices for lymphedema as told to them by healthcare professionals and others | one time only for approximately 15 minutes |
| Identification of current at home self-care practices for lymphedema | one time only for approximately 15 minutes |
Secondary
| Measure | Time frame |
|---|---|
| Identification of patient-perceived benefits to at home self-care | one time only for approximately 15 minutes |
| Relationship between at home self-care activities, symptoms, and quality of life in breast cancer survivors with lymphedema | one time only for approximately 15 minutes |
Countries
United States
Outcome results
None listed