Developmental Disabilities, Intellectual Disabilities, Mental Retardation
Conditions
Keywords
mental retardation, downs syndrome, autism, autism spectrum disorder, cerebral palsy, developmental disability, developmental disabilities, intellectual disability, intellectual disabilities, health promotion, disease prevention, physical health, emotional health, behavioral health, mental health, spiritual health, prevention
Brief summary
Relatively few health promotion and disease prevention programs have included or targeted people with disabilities, and even fewer have focused on individuals with intellectual disabilities. The long-term objectives of the Healthy Lifestyles for People with Intellectual Disabilities Study (HLID) are to increase the health of persons with intellectual disabilities by establishing the efficacy of a health promotion program and promoting its adoption. The HLID Study is based in the Center on Community Accessibility (CCA) at Oregon Health & Science University. The mission of CCA is to increase the health and health-related quality of life of persons with disabilities. A pilot study conducted by CCA has established the effectiveness of the Healthy Lifestyles (HL) intervention among a cross-disability population in increasing health behavior adoption. The specific aim of the HLID Study is to test the efficacy of the HL program specifically with adults with intellectual disabilities. The HLID Study uses a randomized control study design. The HL intervention will be administered to 75 adults and will compare results to those of an additional 75 adults who receive no intervention. Measurement will include anthropometric assessments to measure impacts on overweight and obesity, as well as self-report measures of healthy behaviors, health status, health care utilization, and secondary conditions. Results will be shared with research participants, presented through professional conferences and newsletters, and published in peer-reviewed journals with the assistance of community partners.
Interventions
BEHAVIORALHealthy Lifestyles Curriculum
Three consecutive days of six hours of training comprised of instruction and participant interaction.
Sponsors
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Study design
Allocation
RANDOMIZED
Intervention model
PARALLEL
Primary purpose
PREVENTION
Masking
NONE
Eligibility
Sex/Gender
ALL
Age
18 Years to 65 Years
Healthy volunteers
Yes
Inclusion criteria
* Living in Oregon or Southwest Washington * Ages 18-65 years * Have mild or moderate mental retardation/developmental disability/intellectual disability as defined by Oregon or Washington state (depending on place of residence) developmental disability service delivery system * Eligible in Oregon or Washington (depending on place of residence) to receive services for people with mental retardation/developmental/intellectual disability * Living in the community (i.e., group home, with family/friends, on own with or without support) * Participant defined health status of excellent, good, or fair * Participant expressed interest in participation in study * Participant expressed willingness to be assigned to either Workshop or Control study group
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Health Promoting Lifestyles Profile II | Pre, post, and follow-up |
Secondary
| Measure | Time frame |
|---|---|
| waist circumference | pre, post, and follow-up |
| Community Integration Questionnaire | pre, post, and follow-up |
| Healthy Lifestyles Knowledge Test | pre, post, and follow-up |
| Starting and Continuing Healthy Behaviors | pre, post, and follow-up |
| Body Mass Index (BMI) | Pre, post, and follow-up |
| Living Well with a Disability Evaluation | pre, post, follow-up |
| General Health Survey | pre, post, follow-up |
| Healthy Lifestyles Goal Tracking Form | post and follow-up |
| Self-Efficacy and Social Support for Activity for Persons with Intellectual Disabilities | pre, post, follow-up |
Countries
United States
Outcome results
None listed