Quality of Friendships in Children With Neurofibromatosis

Quality of Friendships in Children With Neurofibromatosis: Relationship to Disease Severity

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT00508235

Enrollment

Registered

2007-07-27

Start date

2004-12-31

Completion date

2009-07-31

Last updated

2012-08-01

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Neurofibromatosis

Keywords

Neurofibromatosis, Quality of Friendships, Disease Severity, Questionnaire, NF-1

Brief summary

The aim of this study is to determine if children with a higher disease severity have lower quality friendships than children who are less severely affected and children who are unaffected. Researchers will test the hypothesis that the quality of friendships is inversely related to their disease severity. Specific Aims: 1. To use the FQQ to determine if the quality of friendships in children with NF1 is lower than the quality of friendships in unaffected children. 2. To use a disease severity scale and the FQQ to determine if children who are less severely affected have higher friendship qualities than children who are more severely affected.

Detailed description

You (your) child will be asked to complete a short questionnaire (40 questions) about their relationship with their best friend. Doctors will review your (child's) medical chart to find out how severe the disease is, so that this may be compared to the answers you have (your child has) given on the friendship questionnaire. This is an Investigational Study. About 90-100 children and adolescents with NF-1 will be asked to take part in this study. All will be enrolled at M.D. Anderson.

Interventions

BEHAVIORALQuestionnaire

Questionnaire about the patient's relationship with their best friend.

Study design

Observational model

CASE_ONLY

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Age

8 Years to 18 Years

Healthy volunteers

Inclusion criteria

1\) Patients with a clinical diagnosis of neurofibromatosis, type 1 (NF-1) who are between the ages of 8 and 18 years will be eligible. Patients must be English or Spanish speaking (test instrument will be translated into Spanish), and be able to read.

Design outcomes

Primary

Measure	Time frame
Disease severity scale and Friendship Quality Questionnaire (FQQ)	Questionnaire completion by patient and chart review by doctor for disease severity scoring.

Countries

United States

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026