German Adrenocortical Carcinoma Registry

Deutsches Nebennieren-Karzinom-Register - German Adrenocortical Carcinoma Registry

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT00453674

Enrollment

1000

Registered

2007-03-29

Start date

2003-01-01

Completion date

2030-12-31

Last updated

2026-08-24

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Adrenocortical Carcinoma

Keywords

Adrenal cancer, Treatment, Surgery, Mitotane

Brief summary

Basic objective of the German Adrenocortical Carcinoma Registry is to improve the care of patients with adrenocortical cancer. The registration of as many patients as possible helps to collect data for the prognosis and prospects of success regarding different treatment plans. This data will be taken into consideration for planning prospective studies. With this registry, the recruitment of patients for prospective studies will be significantly facilitated. In this way - and in cooperation with networks in other countries (e.g. in Italy and France) - a structure allowing systematic improvement of therapy will be developed.

Interventions

None listed

Study design

Observational model

COHORT

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Healthy volunteers

Inclusion criteria

* Histologically confirmed diagnosis of adrenocortical carcinoma

Design outcomes

Primary

Measure	Time frame	Description
Overall Survival	From date of diagnosis until the date of death from any cause (or last follow-up), whichever came first, assessed up to 100 months	overall survival is defined as the length of time from diagnosis or the start of treatment until death from any cause.

Countries

Germany

Contacts

CONTACTMartin Fassnacht, MD

fassnacht_m@medizin.uni-wuerzburg.de49-931-201-36507

CONTACTMichaela Haaf

haaf_m@ukw.de

PRINCIPAL_INVESTIGATORMartin Fassnacht, MD

University of Wuerzburg

Outcome results