Registration and Informed Consent Study for the Childhood Cancer Research Network

Protocol for Registration and Consent to the Childhood Cancer Research Network - A Limited Institution Pilot

Status

Completed

Phases

Study type

Interventional

Source

ClinicalTrials.gov

Registry ID

NCT00433394

Enrollment

2242

Registered

2007-02-12

Start date

2001-05-31

Completion date

2011-01-31

Last updated

2013-06-27

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Unspecified Childhood Solid Tumor, Protocol Specific

Keywords

unspecified childhood solid tumor, protocol specific

Brief summary

RATIONALE: Collecting informed consent from parents of children with cancer to register with the Childhood Cancer Research Network may help the study of cancer in the future. PURPOSE: This study is collecting informed consent to register younger patients with cancer into the Childhood Cancer Research Network.

Detailed description

OBJECTIVES: * Obtain informed consent from parents (and the child, when appropriate) of children diagnosed with cancer (who are under 21 years of age) to register their child's name and address with the Childhood Cancer Research Network. * Obtain informed consent from parents (and the child, when appropriate) of children diagnosed with cancer (who are under 21 years of age) to be contacted in the future for possible participation in non-therapeutic research studies involving the parents and/or child. * Facilitate the systematic registration of pediatric and adolescent patients diagnosed with cancer into the Childhood Cancer Research Network. OUTLINE: Consent is obtained from parents (and pediatric patients, where applicable) to register the patient's and parent's names and addresses with the Childhood Cancer Research Network, provide a copy of the pathology report to the Network, and contact parents in the future for possible non-therapeutic research studies involving the parents and/or child. Information provided will be held in strict confidence. PROJECTED ACCRUAL: Not specified

Interventions

PROCEDUREcancer prevention intervention

PROCEDUREeducational intervention

Study design

Allocation

Intervention model

SINGLE_GROUP

Masking

NONE

Eligibility

Sex/Gender

ALL

Age

No minimum to 20 Years

Healthy volunteers

Inclusion criteria

DISEASE CHARACTERISTICS: * Child (\< 21 years of age) with newly diagnosed cancer PATIENT CHARACTERISTICS: * Not specified PRIOR CONCURRENT THERAPY: * Not specified

Design outcomes

Primary

Measure	Time frame
Informed consent collection to register with the Childhood Cancer Research Network	—
Informed consent collection for possible participation in future non-therapeutic research studies	—
Facilitation of systematic registration into the Childhood Cancer Research Network	—

Countries

Canada, United States

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026