Autism
Conditions
Keywords
Autism spectrum disorders, long-term outcomes, caregiver burden, birth cohort, nested case-control study
Brief summary
Background: The number of adults with autism is expected to rise significantly in the near future, due to two main reasons: First, a dramatic increase in the estimates of the prevalence of autism starting in the mid 1980s; Second, the clinical diagnosis of autism was first introduced during the 1950s, and those diagnosed with autism back then are only now entering middle age. Few studies, however, have focused on the outcomes of adult autistic individuals, and very little is known about the course of autism in adulthood and on the familial burden resulting from caring for an autistic adult. We therefore propose to study adult outcomes in autism, and to examine the influence of raising an autistic individual on the parents. Working hypothesis and aims: The primary objectives of the study are: 1. Determine clinical status and functioning of autistic adults. 2. Study the influence of raising and caring for an individual with autism on the well-being of the parents.
Interventions
None listed
Sponsors
Sheba Medical Center
Study design
Observational model
COHORT
Time perspective
PROSPECTIVE
Eligibility
Sex/Gender
ALL
Age
30 Years to 45 Years
Healthy volunteers
Yes
Inclusion criteria
* Autism or autism spectrum disorder * Understands the informed consent * Hebrew Speaker
Exclusion criteria
* Severe acute or chronic illness * Substance abuse * In control subjects: Autism or autism spectrum disorder in subject or siblings * In control subjects: participating sibling
Countries
Israel
Outcome results
None listed