Amyotrophic Lateral Sclerosis Web Based Patient Care Database: ALSConnection.Org

Amyotrophic Lateral Sclerosis Web Based Patient Care Database

Status

Completed

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT00302198

Enrollment

15000

Registered

2006-03-14

Start date

2006-01-31

Completion date

2010-02-28

Last updated

2010-03-02

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Amyotrophic Lateral Sclerosis

Keywords

Amyotrophic Lateral Sclerosis

Brief summary

The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.

Detailed description

Any person who has been diagnosed with ALS by a physician can enroll into this registry. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.

Interventions

BEHAVIORALALS Registry

Study design

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Healthy volunteers

Inclusion criteria

* There are no inclusion and

Exclusion criteria

beyond the fact that a person needs to have ALS in order to enroll.

Countries

United States

Outcome results

None listed

Source: ClinicalTrials.gov · Data processed: Feb 4, 2026