Case Notes Review on Patients With Hereditary Haemorrhagic Telangiectasia

Hammersmith Hospital Patients With Pulmonary Arteriovenous Malformations (PAVMs) and Hereditary Haemorrhagic Telangiectasia

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

ClinicalTrials.gov

Registry ID

NCT00230685

Enrollment

2000

Registered

2005-10-03

Start date

2000-01-31

Completion date

2028-01-31

Last updated

2023-09-28

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Telangiectasia, Hereditary Hemorrhagic

Keywords

Pulmonary arteriovenous malformations

Brief summary

This observational study is for individuals with Hereditary haemorrhagic telangiectasia and pulmonary arteriovenous malformations that are reviewed at the Hammersmith Hospital, London.

Detailed description

The Hammersmith Hospital provides a clinical service for patients with Hereditary haemorrhagic telangiectasia and pulmonary arteriovenous malformations that is unique in the United Kingdom. Measurements obtained as part of standard clinical practice that has evolved since 1985 allow us to assess whether particular groups of individuals that we see are more prone to recognised complications such as strokes, brain abscesses, pregnancy related complications or pulmonary hypertension. We hypothesise that certain clinical characteristics will predict the susceptibility of individuals to particular complications.

Interventions

None listed

Study design

Observational model

COHORT

Time perspective

PROSPECTIVE

Eligibility

Sex/Gender

ALL

Healthy volunteers

Inclusion criteria

* Patients attending Hammersmith Hospital

Exclusion criteria

* None

Design outcomes

Primary

Measure	Time frame	Description
Stroke	Prospective	Ischaemic stroke attributable to PAVMs
Venous thromboemboli (VTE)	Prospective	VTE of any origin

Countries

United Kingdom

Contacts

Primary ContactClaire L Shovlin

c.shovlin@imperial.ac.uk0208 383 1000

Outcome results