Online Family Resilience Program for Parents of Children with Spinal Muscular Atrophy

Development and Evaluation of an Online Family Resilience Enhancement Program for Parents of Children with Spinal Muscular Atrophy

Status

Active, not recruiting

Phases

Unknown

Study type

Interventional

Source

CRIS

Registry ID

KCT0011831

Enrollment

Registered

2026-04-10

Start date

2024-04-05

Completion date

Unknown

Last updated

2026-04-14

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Interventions

Others(psychosocial intervention) : The intervention is an online family resilience enhancement program designed for parents of children with spinal muscular atrophy (SMA). The program was developed b

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: The study participants will be parents aged 19 years or older who are raising children or adolescents diagnosed with spinal muscular atrophy (SMA). Participants who meet the following criteria will be eligible for inclusion: individuals who understand the purpose of the study and voluntarily agree to participate; individuals who are able to understand study-related questions and communicate verbally; and individuals who are able to use a mobile device or computer.

Exclusion criteria

Exclusion criteria: Participants who are currently participating in other family support intervention programs provided by external institutions during the study period will be excluded.

Design outcomes

Primary

Measure	Time frame
family resilience	—

Secondary

Measure	Time frame
family functioning;quality of life	—

Countries

Korea, Republic of

Contacts

Public ContactHyo Jin Kim

Seoul National University

hj.kim20916@snu.ac.kr+82-2-333-4444

Outcome results