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Prevalence and long-term prognosis of Peutz–Jeghers Syndrome in Korea

Prevalence and long-term prognosis of Peutz–Jeghers Syndrome in Korea: A Nation-Wide, Population-Based Retrospective Cohort Study

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CRIS
Registry ID
KCT0005468
Enrollment
200
Registered
2020-10-12
Start date
2020-10-31
Completion date
Unknown
Last updated
2020-11-03

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Interventions

None listed

Sponsors

Hallym University Medical Center-Dongtan
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: 1. all patients with Peutz–Jeghers Syndrome identified by diagnosis in the data of the Health insurance review & assessment service (first analysis) 2. all patients newly diagnosed with Peutz–Jeghers Syndrome during the past 16 years (2004 to 2019, secondary analysis)

Exclusion criteria

Exclusion criteria: 1. Patients whose records are omitted for various reasons may inevitably be excluded, but such cases are estimated to be rare.

Design outcomes

Primary

MeasureTime frame
Prevalence—

Secondary

MeasureTime frame
Age at the time of diagnosis;the time of death, abdominal surgery, and cancer—

Countries

Korea, Republic of

Contacts

Public ContactSang Pyo Lee

Hallym University Medical Center-Dongtan

Outcome results

None listed

Source: CRIS (via WHO ICTRP) · Data processed: Feb 4, 2026